Rosamund Snow (1971-2017) will be remembered by many for her work to champion patients’ involvement in healthcare. Diagnosed with type 1 diabetes in her teens, Rosamund was later asked to help a consultant at her outpatient clinic investigate its high ‘did not attend’ rate; she explains what she found in this talk, addressing a TED×NHS event in 2016. 
Urging her audience to involve patients in service quality improvement, Rosamund said: “All you have to do is ask us. And we can turn your bag full of question marks into a lightbulb moment.”
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Three years earlier, Rosamund had gained a PhD, exploring ‘The role of patient expertise inside and outside the health system: patient education in diabetes’. At the time of her death, Rosamund’s work included helping to develop patient involvement in curriculum design and teaching communication skills to medical students in Oxford, and championing the increased involvement of patients at the BMJ, where she was Patient Editor.
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Rosamund’s mother, Mary Snow, has established a prize in Rosamund’s name to enable two people aged under 30, with experience as health service users and an interest in evidence-based medical research, to attend the Cochrane Colloquium which takes place on 16-18 September 2018 in Edinburgh. 
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Blog Posts

Launch of Mad In Asia - online platform

Posted by Jill Anderson on July 17, 2018 at 10:14 0 Comments

Mad in Asia is an online platform whose primary mission is to contribute to changing the narrative about madness and mental distress.

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Community Open Online Courses (COOCs)

Posted by Jill Anderson on July 17, 2018 at 10:08 0 Comments

Community Open Online Courses (COOCs) are an opportunity for people to share their passions, ideas and knowledge with each other.  What learning is created is down to you, the users.  Learning is most enjoyable when it is taught by those with enthusiasm and a desire to share what they know.  The word ‘courses’ is loosely used, there are no exams, no tests, no qualifications required.  The aim is to get people from all parts of the community to generate learning opportunities and to share…

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The Angry Consumer - embracing difficult conversations

Posted by Jill Anderson on July 10, 2018 at 10:54 0 Comments

This is a great new blog post by Nev Jones. 

Download here.

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Posted by Jill Anderson on July 1, 2018 at 19:05 0 Comments

Assessment for Social Justice: perspectives and practices within higher education, by Jan McArthur, looks at assessment in HE through the lenses of critical pedagogy and social justice, and offers new insights to both fields of enquiry. …

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Trauma and Madness in Mental Health Services - new book

Posted by Jill Anderson on June 30, 2018 at 10:30 0 Comments

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Is written entirely from the perspective of people with lived experience

Offers resources and directions for the future, as recommended by people with the experiences in consideration.

Find out…

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Social policy first hand An international introduction to participatory social welfare

Posted by Jill Anderson on June 29, 2018 at 14:30 0 Comments

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Mad Studies webinar series

Posted by Jill Anderson on June 27, 2018 at 13:59 0 Comments

This series of eight online webinars will introduce participants to mad studies, an emerging, interdisciplinary field encompassing a variety of philosophical, social, and cultural perspectives on what we consider "madness." As a discipline, mad studies seeks to challenge dominant understandings of "mental illness," rejecting the notion that the biomedical model of psychiatry is an accurate interpretation of human mental and emotional states. Mad studies offers a variety of alternative…

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Paying people who receive benefits - coproduction and participation.

Posted by Jill Anderson on June 27, 2018 at 13:55 0 Comments

This At a glance briefing, from SCIE, looks at benefit changes that can make it easier for people who use services and carers to get involved in paid co-production/ participation in health and social care. 

View the briefing.

Independent review of the Mental Health Act: A summary of the interim report

Posted by Jill Anderson on June 15, 2018 at 14:57 0 Comments

This useful briefing, on the NHS Confederation website, summarises key points from the interim report for Mental Health Network members.  View the briefing.

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